Connecting People, Connecting Support is an online space where people with dementia, family members and care staff can access post-diagnostic materials informed by our research programme Journeying through Dementia.
Project team: Claire Craig, Helen Fisher
Funded by: Research England
Partners: Alzheimer Scotland, Royal College of Occupational Therapists,
Scottish Dementia Working Group
The web-platform was created in response to the COVID-19 pandemic in 2020, which saw many individuals confined to home and unable to access vital services. The web-site was highly successful in providing a platform through which individuals and their families could access the Journeying through Dementia research and it was found to be a positive way to engage with a wide-number of individuals. Within two months of its launch the materials had been down loaded over 30,000 times, formed the basis of interventions used by the Alzheimer Scotland link workers. The research team was invited to offer a webinar to over 150 Allied Health Professionals about the work (see link) and it was cited in the Guardian as an example of best practice in relation to University responses to the COVID-19 pandemic.
Our clinical support worker has been using the website to focus welfare phone calls for people living alone at home with dementia. They’ve gained quite a rapport from using the topics as themes for their conversations – great work!Allied Health Professional
The Scottish Dementia Working Group undertook an evaluation of the materials and feedback was overwhelmingly positive.
The work had formed the starting point of a broader enquiry, which seeks to build understanding of the design qualities and features that can help people with dementia to meaningfully engage with this technology. The next phase of the work will be to test a series of principles and practices that have been developed in the delivery of a group-work intervention on-line.
I am amazed at what you have achieved in such a small amount of time.Allied Health Professional
Carers don’t have the energy to search for things online so having this all in one place is great… People feel like they’ve won the lottery when they see the website!Allied Health Professional